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9 Jan 2009, 1:41 AM GMT
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SD! : Web boards : Submission : "Acceptance of and submission to a disability" 1 2 3 4
Acceptance of and submission to a disability (39)
Sun 31 Aug 08, 1:29 AM Flowerbelle UK, 14 mths |
Hello everyone - i've recently had to come to terms with being virtually house bound because of my disability (absolute fatigue, muscle and joint pains) and i wondered if anyone had any experience of coming to terms with a disabling condition, and how they coped with it? Acceptance can be very hard. |
31 Aug 08, 2:03 AM slaveheatherleigh US(DE), 14 mths |
Flower
I have a disability due to a serious car accident. I was basically house and bed bound for almost 2 yrs. I still have problems. I also have LUPUS which got worse because of the pain and stress of it all. I can relate to what you are going thru. Acceptance is hard but will say once you have you can start to heal. What does help with what you are going thru is MSM with condtitin and Gluscosamine. Also really paying attention to what you eat. Be faithful to the supplement I just mentioned, talk to your doc or a nutritionist for what will help with your energy level. Start slow but start walking, it helps. Swimming also does wonders. It is very hard. I was always very fit and all and from being laid up gained weight, mainly in belly.
I have a new puppy now whom I have to walk. But believe me there are times I just don't really feel like doing that but I will push myself and do it. There are still times I have to use a cane. But the more I walk and swim and pay attention to what I eat, take my vit., calicum and the msm supplement the better I do. Even tonight after a fairly long walk with the puppy I hurt a whole lot but I just worked thru it. For me it is now 3.5 yrs since accident and I still do have to take a pain med here and there. If you need any futher info just let me know. I truly do know how you feel. But once you accept your disability the sooner you can get on the road to recovery and enjoy life again. But it does take as much mental as physical. |
31 Aug 08, 5:59 AM Flowerbelle UK, 14 mths |
Thank you for your reply - i'm so sorry for your illness and happy you are recovering now.
Yes thats how it feels, that i must accept it, but it is very hard to do. How did you do the actual accepting? |
31 Aug 08, 6:08 AM 000-168-219 UK, 7 yrs  |
hi sorry to hear about your condition.i myself suffered a heart attack 4 years ago today.plus i have now got c.o.p.d
which is a breathing disorder.i am house bound most of the time not able to walk.physical sex out of the question.but we have found a way around that.but cheer up not all is as bad as it seems.you will find a way around things good luck to you. |
31 Aug 08, 11:39 AM slaveheatherleigh US(DE), 14 mths |
Flower,
I had no choice, I just accepted it. Your symptoms are very much like mine. I still have days when I really can't get out of bed. But because of my pets, 2 dogs and 5 cats, I get up and at least take care of them. They have been the biggest thing to my recovery. I have also dealt with docs and things to do to help in mobility. And like I said, the MSM supplement does wonders. I hurt this morning, shuffle when I walk, after a very long walk with my puppy last night, but I just mainly use my mind, get moving, and do my best. Yes, I do live with pain every day but I just won't let it beat me. I do very much have to pay attention to diet because of LUPUS. And when that goes active, the cronic fatigue is horrible. There have been bad ones where I basically can just sleep for 3 or more days, getting up briefly. It is hard but once you accept what it is, only then can you do something about it.
And what you describe does sound very very much like LUPUS. |
31 Aug 08, 7:08 PM ravenkaldera US(MA), 3 yrs 
|
I've dealt with this occasionally in the past ... and let me tell you, as a dom, it sucked. (wry grin) I also have lupus, and while it's doing better at the moment, the Wolf is an erratic illness that can leap up and attack at any time. For myself, having a slave who is also my personal care attendant helped. My boy has gotten very good at doing undignified things for me in a way that frames them as a luxury service and not just helping an invalid.
For a sub, I suppose it would be harder for someone who was very service-oriented. Someone more control-oriented could just be a good patient under their M's orders.
BTW, things that really helped with lupus for me:
1) Acupuncture. Really. Did wonders for the pain management. It's cumulative, so it takes a while, but it is really worth it. They've now done studies that show it's really good for pain. It also helped quiet my immune system.
2) Getting lots of sleep. Sleep deprivation causes flares.
3) Lowering the chemical load - eating organic whole foods, not smoking, not breathing in household chemicals. Chemicals overstimulate the immune system and cause flares. The "cleaner" your system is, the fewer flares.
4) Herbs. Too many to list here.
5) Regular massage and bodywork. Again, good pain management. Thai yoga massage is especially good for joint stuff.
6) Tai chi, when I could manage it. Good exercise for tired crips.
It's working, because I am alive and walking well past the point when I was told I should be dead.
In the meantime, see what you can learn while housebound. Some skills can be learned while laying in bed. You can make yourself more valuable that way. If you're too tired to read, books on tape can even help.
-Raven Kaldera, who sometimes writes books while bedridden -If you're in charge, it's all on your head. If it's not all on your head, then you're not really in charge.
|
31 Aug 08, 9:22 PM slavegail UK, 3 yrs Y! |
written with permission of NG1.
this slave and her owners does not have any sort of disabillity. but has the greatest admeration for thoes that do and still manage to live in te lifestyle.
a gold medel for all of you .
slavegail/NG1 slavegail Property of NG1
|
31 Aug 08, 11:58 PM slaveheatherleigh US(DE), 14 mths |
ravenkaldera wrote:
I've dealt with this occasionally in the past ... and let me tell you, as a dom, it sucked. (wry grin) I also have lupus, and while it's doing better at the moment, the Wolf is an erratic illness that can leap up and attack at any time. For myself, having a slave who is also my personal care attendant helped. My boy has gotten very good at doing undignified things for me in a way that frames them as a luxury service and not just helping an invalid.
For a sub, I suppose it would be harder for someone who was very service-oriented. Someone more control-oriented could just be a good patient under their M's orders.
BTW, things that really helped with lupus for me:
1) Acupuncture. Really. Did wonders for the pain management. It's cumulative, so it takes a while, but it is really worth it. They've now done studies that show it's really good for pain. It also helped quiet my immune system.
2) Getting lots of sleep. Sleep deprivation causes flares.
3) Lowering the chemical load - eating organic whole foods, not smoking, not breathing in household chemicals. Chemicals overstimulate the immune system and cause flares. The "cleaner" your system is, the fewer flares.
4) Herbs. Too many to list here.
5) Regular massage and bodywork. Again, good pain management. Thai yoga massage is especially good for joint stuff.
6) Tai chi, when I could manage it. Good exercise for tired crips.
It's working, because I am alive and walking well past the point when I was told I should be dead.
In the meantime, see what you can learn while housebound. Some skills can be learned while laying in bed. You can make yourself more valuable that way. If you're too tired to read, books on tape can even help.
-Raven Kaldera, who sometimes writes books while bedridden
|
I am glad to hear you are maintaining. I too have done much to control it. And when I get an active episode it is usually brought on by stress and lack of sleep. I know when it is going active as cronic fatigue is first to hit. I just go to bed and do take my supplements. I found the MSM supplement really helps along with diet. I refused when the doc said I should take steriods. That does more damage then good. There are some wonderful websites on it and things that will help one maintain. I have too as I also have many pets that depend on me not just a house to maintain. For now I have had many more good days and very few active episodes but do know that joint pain is usually a constant. But life has to go on and all you can do is deal with it the best one can. |
1 Sep 08, 2:14 AM Flowerbelle UK, 14 mths |
But how did you cope (or how can i) with the realisation that this will be your life from now on - virtually bedridden and too fatigued and brain mashed to be able to study or write anymore? That the rest of my life will be spent lying in bed? i always coped before by thinking i would be better one day but i don't have that anymore. How can i salvage something and make my life still worth living?
(thank you for allyour replies) |
1 Sep 08, 2:27 AM slaveheatherleigh US(DE), 14 mths |
Flower,
I guess first knowing what has placed you there would be helpful.
Acceptance is very hard. But to not accept is denying you your life.
I know acceptance was the first thing. And to be honest, if not for my pets, I probably wouldn't be here. They have given me the will to work hard at recovering and to start going forward. Yes there are times when I am laid up in bed but because of them, I get up and push myself. Yes, I live in pain every day but that is just part of life now. Yes there are days when the cronic fatigue makes me just want to stay in bed but I force myself to get up. Even if it is only for a few hours at a time.
I have no choice but to accept what life has given me but to be alive actually when I should not be at this time, has made me appreciate life all the more. There is hope after acceptance and then you can start to live. To just give up is just not an option.
I hope this helps some. |
1 Sep 08, 5:19 PM 976-188-983 US(ID), 8 mths  |
Flowerbelle wrote:
Acceptance of and submission to a disability
Hello everyone - i've recently had to come to terms with being virtually house bound because of my disability (absolute fatigue, muscle and joint pains) and i wondered if anyone had any experience of coming to terms with a disabling condition, and how they coped with it? Acceptance can be very hard.
|
I have also had to come to accept my disability, fibromyalgia, and how it affects the way that my Master and I play and interact. What you describe sounds very much like fibro. I suffer from debilitating fatigue, muscle and joint pain as though I had the worst flu imagined, memory loss and what is called fibro fog where you just don't know what you are doing or supposed to do. Acceptance of it was hard for me but when I did it made life a bit better because then I took the initiative to get help and learn how to control the disease. It helps alot to have family and friends to help you get past the denial stage and into the acceptance. Make sure you and your Master both go to the doctor to learn about what ever disease you may have, this way He knows the symptoms and how to help you through them as well as you. I hope this helps and keep your chin up, it gets better.
In Service and In Love |
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